From: Andrew Johnson
Date: 2014-02-09 22:20:53
Sorry to bother you with this if you’re not in the UK…. Neil A has sent me a link to this site, where you can download an Opt-Out form and print it medconfidential.org/… – please note this update though *BREAKING NEWS 7 Feb 2014* GP magazine Pulse reported on 7/2/14, “Patients who have opted out of the scheme will still have their records sent to the HSCIC stripped of identifiers” (see 4th paragraph from bottom of this article). This confirms something buried on page 9 of NHS England’s recently-published care.data Privacy Impact Assessment [PDF], which states: Where patients have objected to the flow of their personal confidential data from the general practice record, the HSCIC will receive clinical data without any identifiers attached (i.e. anonymised data). i.e. the intention is to still to extract information from the medical records of people who had opted out, just not with their NHS number, postcode, date of birth and gender attached. This is not what any reasonable person would understand by opt out – if you opt out, noinformation from your medical record should leave your GP practice. We are working hard to resolve this and will let you know as soon as we can what is going on. If you want to be kept informed of latest updates, please:
